Connect with a family who has already gone through the challenges you face.
Provide guidance, support and inspiration to other families so they know they are not alone.
Find a trusting physician with active clinical experience in diagnosing and treating patients with Wiskott-Aldrich Syndrome.
You CAN make a difference. Find out how you can help us in the fight against Wiskott-Aldrich Syndrome.
Ask our community of doctors and families your questions, or answer questions with your own experience and expertise.
Search emerging treatments for WAS such as Gene Therapy, learn about the criteria for eligibility, and find out how to apply.
Organization News
As of Dec 15, 2024 we are at $17,600 of our $40,000 fundraising goal! Two families have agreed to match up to $20,000 . See our WAS Facebook page for more details on how to get involved and contribute to help our WAS patients and their families or click on DONATE button!
Please view Michael Albert, M.D Talk on "Time to stop using XLT and mild-WAS to label patients" on May 10, 2024 . Read the Q&A Report based on audience questions.
EL-PFDD Voice of the Patient report approved. Read the report here.
EL-PFDD Meeting Feb 3, 2023 event successful broadcast with participation of Physicians, Researchers, FDA WAS families and board members.
The Wiskott-Aldrich Foundation was pleased to sponsor the 5th International WAS Family Conference in National Harbor, Maryland on June 20-22, 2019.
Wiskott-Aldrich Foundation Chairman Mike Skrynecki receiving notices for philanthropy award:
Medical and Research News
FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease. Approval of these innovative gene therapies spells hope for approval of gene therapies for WAS.
Synthetic Platelets built to treat bleeding: A significant milestone in the field of bio-mimetic materials.
Deficiency of WASp in B cells leads to abnormalities in B cell function: A study using mice with isolated WASp deficiency in B cells.
New vector developed for WAS gene therapy Researchers develop a novel vector for the gene therapy of WAS with improved safety features.
Dr. Fritz Bach (1934-2011), transplant pioneer dies Dr. Bach, researcher and physician who played a key role in the first bone-marrow transplant for WAS in 1968 passes away.
Families in the News
Butterfly garden opened in honor of Joey Rogers in New Jersey Dolly Rogers from New Brunswick opens butterfly garden in honor of son, Joey Rogers who died four years ago.
To hear about some of our families, please see EL-PFDD broadcast.