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Physicians in the U.S.
There are several physicians in the U.S. with expertise and experience in treating patients with WAS. Listed below are the leading WAS experts in the country and physicians who have expertise or have an active clinical interest in following patients with WAS. These lists are not complete, neither are they comprehensive. If there is any physician who you would like to add to the list please send me the information at sumathidoc@gmail.com and I will be glad to add them to the list.
Leading WAS Experts
Maryland
Senior Investigator, Genetics and Molecular Biology Branch
Head, Disorders of Immunity Section
National Human Genome Research Institute
National Institute of Health, Bethesda, MD
Building 49, Room 3A04
49 Convent Dr, MSC 4442
Bethesda, MD 20892-4442
Tel:(301) 435-2944
Fax:(301) 480-3678
E mail: fabio@mail.nih.gov
Massachusetts
Director, Research and Molecular Diagnosis Program on Primary Immunodeficiencies
Professor of Pediatrics and Pathology
Boston Children's Hospital, Harvard Medical School
1 Blackfan Circle
Boston, MA 02115
Tel:(617) 919-2276
Fax: (617)730-0709
E mail: luigi.notarangelo@childrens.harvard.edu
Washington State
Jeffrey Modell Chair
Chief, Immunology Clinic
Seattle Children's Hospital
Seattle Children's Research Institute
C9S-7-Immunology
1900-9th Ave
Seattle, WA 98101
Tel: (206) 987-7324
E Mail: hans.ochs@seattlechildrens.org
Physicians knowledgeable in the care of patients with WAS
California
Professor of Pediatrics
Chief, Blood and Marrow Transplant Division
UCSF Children's Hospital, Room M659
505 Parnassus Ave
San Francisco, CA 94143-1278
Phone: (415) 476-2188
Fax: (415) 502-4867
E Mail: mcowan@peds.ucsf.edu
Associate Professor
Pediatric Hematology/Oncology
Lucille Packard Children's Hospital at Stanford
770 Welch Rd Ste 261
Palo Alto, CA 95304
Phone: (650) 497-8953
Fax: (650) 725-3219
E Mail: mjeng@stanford.edu
Professor of Clinical Pediatrics
Keck School of Medicine of the University of Southern California
Clinical Director
Division of Research Immunology/Bone Marrow Transplantation
Children's Hospital of Los Angeles
4650 Sunset Blvd. MS #62
Los Angeles, CA 90027
Phone: (323) 361-2546
Fax: (323) 660-1904
E Mail: nkapoor@chla.usc.edu
Depts. of M.I.M.G. and Pediatrics
University of California, Los Angeles
290D BSRB, 615 Charles E. Young Drive South
Los Angeles CA 90095
Phone: (310) -794-1964
E Mail: dkohn@mednet.ucla.edu
Professor, Pediatrics-Immunology and Transplant Biology
Director of the Jeffrey Modell Primary Immunodeficiency Center at Stanford
Professor, Pediatrics
CCSR Building Rm 2115b
Stanford, CA 94305
Phone: 650-498-6073
E Mail: dblewis@stanford.edu
Professor of Pediatrics, Molecular Microbiology and Immunology
Department:Research Immunology/Bone Marrow Transplant
Childrens Hospital Los Angeles
Head, Division of Research Immunology/Bone Marrow Transplantation
4650 Sunset Blvd., MS #62
Los Angeles, CA 90027
Tel: (323) 361-2196
Fax: (323) 906-8192
E mail: rparkman@chla.usc.edu
Professor, Department of Pediatrics and Institute for Human Genetics University of California, San Francisco
513 Parnassus Avenue, HSE 301A, Box 0519
San Francisco, CA 94143-0519
Tel:(415) 476-3181
Fax:(415) 476-3466
E mail: puckj@peds.ucsf.edu
Professor of Pediatrics
Division of Allergy, Immunology and Rheumatology at Mattel Children's Hospital at UCLA
10833 Le Conte Ave Ste 12-430
Los Angeles, CA 90095
Tel: (310) 825-6481
E Mail: estiehm@pediatrics.medsch.ucla.edu
Chief Of Immunology and Rheumatology
Program Director, Pediatric Clinical Research Center
UCSF Children's Hospital
UCSF Medical Centers
505 Parnassus Ave
San Francisco, CA
Tel: (415) 476-2171
Fax: (415)-476-3466
E mail: WaraD@peds.ucsf.edu
Anne T. and Robert M. Bass
Professor of Cancer and Blood Diseases
Chief, Division of Stem Cell Transplantation
Department of Pediatrics
Stanford University School of Medicine
1000 Welch Road, Suite 300, Mail Code 5798
Stanford, CA 94304-5798
Tel: (650) 725-9250
Fax: (650) 724-1164
E Mail: kdnakash@stanford.edu
Colorado
Chairman, Department of Pediatrics
Professor
National Jewish Medical & Research Center
1400 Jackson St
Denver, CO 80206
Phone: (303) 388-4461 / (303) 398-1196
E Mail: gelfande@NJHealth.org
Illinois
Attending Physician, Allergy and Immunology
Director, Primary Immunodeficiency Clinical Services
Associate Professor of Pediatrics
Northwestern University's Feinberg School of Medicine
2300 Children's Plaza, Box 60
Chicago, IL 60614
Phone: (773) 327-3710
Fax: (773) 327-3790
E Mail: rfuleihan@childrensmemorial.org
Massachusetts
Francisco A. Bonilla, M.D. PhD.*
Program Director, Clinical Immunology
Assistant in Medicine
Assistant Professor, Harvard Medical School
Division of Immunology,
Fegan - 6
300 Longwood Avenue
Boston, MA 02115
Phone: (617)-355-6117
Fax: (617)-730-0310
E Mail: Francisco.bonilla@childrens.harvard.edu
Chief, Division of Immunology, Children's Hospital Boston
James L. Gamble Professor of Pediatrics, Harvard Medical School
1 Blackfan Circle
Boston, MA 02115
Phone: (617) 919-2482
E Mail: raif.geha@childrens.harvard.edu
Assistant Professor of Pediatrics, Harvard Medical School
Attending Staff, Combined Department of Pediatric Hematology-Oncology
Children’s Hospital/Dana-Farber Cancer Institute
Karp Family Research Laboratory, Room 08214
300 Longwood Avenue
Boston, MA 02115
Phone: Office: 617-919-2508
Patient Referral Line: 617-632-3961
Fax: 617-730-0934
E Mail: sung-yun.pai@childrens.harvard.edu
Director of Translational Research for Children's Hospital Boston
Leland Fikes Professor of Pediatrics, Harvard Medical School
Children's Hospital Boston
300 Longwood Ave, Karp 08125.3
Boston, MA 02115
Phone : (617)-919-2697
Fax: (617) 730- 0868
E Mail: DAWilliams@childrens.harvard.edu
Missouri
Alan Knutsen, M.D.*
Cardinal Glennon Children's Medical Center
Pediatric Research Institute
St. Louis University Health Sciences Center
1465 S. Grand Blvd
St. Louis, MO 63104
United States
Phone: 314-268-4014
Fax: 314-268-2712
Email: knutsenm@slu.edu
Nebraska
Roger Kobayashi
Clinical Professor of Pediatrics
Allergy, Asthma & Immunology
UCLA School of Medicine
2808 S. 80th Avenue, #210
Omaha, NE 68124
Phone: 402-391-1800
Fax: 402-391-1563
E Mail: rogerkobayashi@pol.net
New York
Pediatric Allergy and Immunology
Montefiore Medical Group Morris Park Cfcc
1300 Morris Park Ave Rm 200
Bronx, NY 10461
Phone: (718) 430-2319
Fax: (718) 430-8982
E Mail: rubinste@aecom.yu.edu
Chair, Department of Pediatrics;
Chief, Pediatric Bone Marrow Transplant Service;
Claire L. Tow Chair in Pediatric Oncology Research
Memorial Sloan-Kettering Cancer Center
425 E 67th St
Memorial Sloan Kettering Pediatrics
New York, NY 10002
Phone: 212-639-5957 Lab Phone: 646-888-2366
Email oreillyr@mskcc.org
North Carolina
J. Buren Sidbury Professor of Pediatrics and Immunology
Division of Allergy & Immunology, Peds
Duke University Medical Center
362 Jones Bldg
Box 2898 Med Center
Durham, NC 27710
United States
Tel: (919) 684-2922
Fax: (919) 681-7979
E Mail: buckl003@mc.duke.edu
Professor of Pediatrics and Pathology
Director, Pediatric Blood and Marrow Transplant Program
Duke University Medical Center
Director, Carolinas Cord Blood Bank
Box 3350 DUMC
2400 Pratt Street, Suite 1400
Durham, NC 27705
Appointment Tel: (919) 668-1100
Office Tel: (919) 668-1119
Fax: (919) 668-1183
email:kurtz001@mc.duke.edu
Ohio
Associate Professor of Pediatrics
Cincinnati Children's Hospital Medical Center
Division of Bone Marrow Transplantation and Immune Deficiency
3333 Burnet Avenue
MLC 7015
Cincinnati, OH 45229
Tel:(513) 636-4266
Fax;(513) 636-3549
E mail: jack.bleesing@cchmc.org
Ralph J. Stolle Chair in Clinical Immunology
Director, Immunodeficiency and Histiocytosis Program
Medical Director, Hematology/Oncology Diagnostic Laboratory
Cincinnati Children's Hospital
3333 Burnet Avenue
Cincinnati, OH 45229
Tel: (513) 636-7206 Fax: (513) 636-3549
E Mail: lisa.filipovich@cchmc.org
Pennsylvania
Chief, Division of Allergy and Immunology
Children's Hospital of Philadelphia
3615 Civic Center Blvd.
Philadelphia, PA 19104
Phone: (215) 590-1697.
Fax: 267-426-0363.
E Mail: sullivak@mail.med.upenn.edu
Texas
Assistant Professor, Baylor College of Medicine
6621 Fannin Street, Feigin center
3rd Floor, FC 330.01
Houston, TX 77030
Phone: (832) 824-2599
Fax (832) 825-1260
E-mail: jxchinen@texaschildrenshospital.org
Clinic Chief, Allergy and Immunology Clinic
6621 Fannin Street, Feigin Center
3rd Floor, MC FC 330.01
Houston, TX 77030
Phone: (832) 824-1319
Fax: (832) 825-1260
E Mail: ihanson@bcm.edu
Chief, Bone Marrow Clinic
Director, Pediatric Stem cell Transplant
Texas Children's Hospital
6621 Fannin Street, MC 3-3320
Houston, TX 77030
Phone: (832) 824-4661
Fax: 832-825-4688
E Mail: rkrance@bcm.edu
Chief of Service,
6621 Fannin Street, Feigin Center
3rd Floor, MC FC 330.01
Houston, TX 77030
Phone: (832) 824-1319
Fax: (832) 825-1260
E Mail: jsorange@texaschildrens.org
Pediatric Allergy and Immunology
1301 Barbara Jordan Blvd. Suite 200
Austin, Texas, 78723
Phone: (512) 628-1870
Fax: (512) 628-1871
William T. Shearer, M.D. PhD.*
Professor, Departments of Pediatrics, and Immunology
Baylor college of Medicine
1102 Bates Ave # Fc330.01
Houston, TX 77030
Phone: (832) 824-1274
Fax: (832) 825- 7131
E Mail: wtsheare@texaschildrens.org
Assistant Professor, Department of Pediatrics, Section of Hematology-Oncology,
Baylor College of Medicine
6701 Fannin St., Ste 1410
Houston, TX 77030
Phone: 832-822-1514
Fax: 832-825-1503
E Mail: lxvenkat@txch.org
Tennessee
Department of Immunology/Mail Stop 351
St. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis, TN 3815-3678
Phone: (901) 595-3977
Fax: (901) 595-3977
Email: maryellen.conley@stjude.org
Washington State
Seattle Children's
Pediatric Hematology/Oncology Physician
Acting Assistant Professor of Pediatrics
Fred Hutchinson Cancer Research Center
Pediatric Hematology/Oncology-Associate in Clinical Research
Phone: (206) 288-SCCA(7222)
Fax: (206) 288-1025
E Mail: lburroug@fhcrc.org
Children's Guild Association Endowed Chair in Pediatric Immunology
Director, Center for Immunity and Immunotherapies
Seattle Children’s Hospital Research Institute
Chief, Division of Immunology
Children's Hospital
Adjunct Professor, Immunology
University of Washington School of Medicine
1900 Ninth Avenue
UW Box 359300-C9S-7
Seattle, WA 98101
Phone: 206-987-7319
Fax: 206-987-7310
Email: drawling@u.washington.edu
Co-director of the Immunodeficiency Molecular Diagnostics Laboratory
Seattle Children's Research Institute
Children's Hospital
4800 Sand Point Way NE
Seattle, WA 98105
Phone: (206) 526-2000, (206)987-7450
Fax: (206) 527-3843
E Mail: ttorgers@u.washington.edu
Associate Professor, Assistant Program Director of the UWSOM Allergy and Immunology Fellowship Training Program
Seattle Children's
R-5441 - Immunology
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-7450
E Mail: suzanne.skoda-smith@seattlechildrens.org
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